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  • "Fingerscrossed123" started this thread

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1

Sunday, August 20th 2017, 11:48pm

Round 2- rfc v gcrm

Hubby and I have been talking about what to do next and look at our options, can anyone shed any light after having a failed attempt how soon you can go again? Any opinions with rfc or gcrm- not sure which one to pick (are they the only 2 in NI?) has anyone did the 3 rounds in gcrm with refund? Not sure about it. also how long in advance do you have to give when going private, or what is waiting list like? Do rfc have to wait on the consultation appointment first and how long does it take! Not sure of rfc prices but think for 2 round gcrm is quite expensive
Sorry about all the questions, now that the news has sunk in we just want to move on but so many questions

Mrsr2017

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Monday, August 21st 2017, 3:23pm

Hi

I can't answer any questions about rfc but I have just finished first (failed) cycle with gcrm. There is no waiting list really it's just when you have your consent appointment then treatment will start as soon after that as AF allows . I think currently consent apppintments are around start of October at the earliest. Access fertility works through gcrm they are a refund /multi cycle program which offers 2 or 3 cycles at a reduced cost (approx 10k for 3 cycles not including drugs ) but depending on which option you choose you can get up to 100% of the cost back if by the end of the 2 or 3 cycles you don't have a baby . You have to apply through gcrm to do the access fertility and they require blood tests and info on age etc .It does work out very expensive as you have to pay the 10k upfront at your consent appointment then pay your drugs separately but it means you have security of 3 cycles if 1st doesn't work or also knowing you will get 10k back if it doesn't work . We didn't use access fertility that cycle but we probably will if we go again . In terms of when you can go again it depends on how your 1st cycle went and what your doctor recommends. My cycle failed on 10th August and I have to go again within 2-3 months for best chance .

I think it's sad that we only have 2 options in NI for treatment . I think that gcrm are the better clinic in terms of success rates etc but then again they are more expensive whether you do access fertility or not .

I hope this has been even a little helpful - we are in the same boat trying to decide what to do next whether to go for access fertility (maybe rob a bank to fund it lol) or to wait on our NHS go which isn't until next year but might be too late for me to use my own eggs . Good luck with whatever you decide xx

Holly555

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Monday, August 21st 2017, 3:29pm

Hi mrs2017. I'm also in the same boat as fingers crossed. You said you didn't choose the access fertility which is paid upfront. Did you have to pay upfront the other way? and do you only get one cycle this way?

  • "Fingerscrossed123" started this thread

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Monday, August 21st 2017, 3:47pm

Thanks for reply mrs. Yea I've been looking into gcrm, they make you pay for all testing done again(even tho hey are all up to date from last cycle) and also they said they drugs are between £600 and £1400 per cycle, that on top of 10500 (icsi) would work out £14000 ( if I count average of £k drugs) for 3 rounds. I know you would get 10500 back if didn't work but it only really is worth it if you have 3 failed attempts, from a financial point of view that is. You could go through 3 rounds in rfc for that price too however because none of us has a crystal ball and we don't know what our future holds for us- it's hard to make a decision. At the min I'm going more towards rfc but I keep changing! How come you were told best chance is in next 2-3 months? Did you just find out failed cycle on the 10th? It's so devastating!!
Holly, how soon do you want to do it again? Are you any clearer in your thoughts that me? Lol!
When I phoned rfc today they told me consultation appointment is 12-15 weeks- it's a long time to wait for a follow up appointment!

Does anyone know if rfc closes over Christmas?

Ellen1

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Monday, August 21st 2017, 4:25pm

Hey! I just want to wish yous all the best for round 2. I'm just about to start ivf treatment at GCRM (I'm 'unexplained' and this will be my first go) I was also thinking about going for the access fertility but in the end we decided to try once with GCRM and if it fails we will wait on our NHS go next year. x

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Monday, August 21st 2017, 6:31pm

Hi fingers crossed. I'm an impatient person so I'd like to get started as soon as possible! I think I'm floating towards GCRM. I'm going to write a letter to RFC and include the fee to get access to all my records so I have them. Then I can decide what clinic to use. Either way it's going to be expensive.

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Monday, August 21st 2017, 8:02pm

Yea I def want to have a plan asap, want to take a holiday in next few weeks but want to make mind up before that. Are you icsi holly? Are you thinking of paying for the 3 go s upfront? If it's one go- I proved both and there's 1200 between them which is quite a bit for one go! Can I ask what's swaying you more to gcrm? Have you any idea how quick you can go again? Wasn't sure if they make you wait a certain time after previous go

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Monday, August 21st 2017, 8:07pm

I just never had a good feeling with RFC. Felt like just a statistic there. Also according to the website the success rates are better with GCRM. I'm just ivf. I've no idea how long to wait. I see GCRM do open evenings so I was going to attend one and ask questions there. I got a reply from RFC to acknowledge they had received my form to say that my cycle had been unsuccessful and they would arrange a review appointment in 12-14 weeks. The refund plan with 3 attempts is what I am currently thinking about.

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Monday, August 21st 2017, 8:35pm

It's so hard to know isn't it?! I see ivf is
2k cheaper upfront- if I was ivf I'd def do it- just the extra 2 k is a lot and Means that if it worked first time
Have spent over 12k in one go. Although with a baby in your arms that's what really matters. Then if I think way down the line (please god) you'd be paying for a sibling too. Gcrm told me when I rang that the the next appointment is 3 weeks time it costs either 180 or 305 and then back again for another review before starting. I don't know why their drugs are so expensive compared to rfc (almost double) and they also won't let you use your tests such as sperm analysis and amh, they require them done at their clinic and again double the price. They lady on the phone has put me off for she just listed all the costs and and what have to pay for before it all began.
Wonder why rfc take so long for review app.
Mrs2017a did you always have the same doc in gcrm? In rfc it always changed and I think it's better if you got same doc

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Monday, August 21st 2017, 8:47pm

this is why I want to go to one of the open evenings. To hear exactly what the costs are exactly. And then when I go for my review appointment and hear what the RFC costs are and then decide. It's ridiculous if they won't use tests result ults from RFC. It says on the GCRM website to bring along any copies of previous treatments to avoid repeating some investigations.

Also having a different doctor each time at RFC drove me insane!

Mrsr2017

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Monday, August 21st 2017, 8:47pm

Hi fingers crossed

I told them at my review that mentally I needed some time to get over the failed go and was told to take no more than 2 or 3 months just for my particular situation but everyone is different and I'm sure you could take as little or as long as you want . I didn't do access fertility 1st time round as I didn't really know much about it so we just done one cycle and paid like normal . (This is paid upfront at consent appointment as well so you have a consultation 1st and once investigations are complete then you have consent and pay . I think it was around 4K for icsi then drugs on top of that (mine were 1200) but still no where near 12k that access would cost . Yes you get a refund if unsuccessful but something to remember access like all goes to be within a year normally and that is ALOT to put your body through in one year also if it works 1st time then you've spent 12k (of course would be great if it worked but it's all about weighing up what's best for you )

One thing I will say os yea I would recommend gcrm they have fantastic facilities doctors and nurses are fab and even though it didn't work out for us I would recommend them however I didn't feel like our review appointment was of any use whatsoever we had icsi 6 mature good quality eggs and only 1 fertilised and no answers as to why or what would be done differently next time basically they would do same over again and hope for better results so I am not sure if we will go with them or look at other options such as ivf abroad where there is better technology more advanced treatments and of course much cheaper than here but I don't know how I feel about going through All that away from home . We are just looking at all our options we have been told to go again as soon as possible but it's just so much money . Our NHS consultation isn't until this Friday (delayed since April due to GP mess ups but will be at least 9-12 months for that go so we need to try and have another go before then if I want to try with my own eggs

It's so hard to know what to do for the best

M xx

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Monday, August 21st 2017, 8:49pm

Always had same doc apart from surgeon doing EC and they used hubbys SA from rfc and didn't make him repeat it and this was only in June there so I can't see them having changed there policy so quickly though maybe they did ?!

  • "Fingerscrossed123" started this thread

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Monday, August 21st 2017, 11:42pm

That's good we're able to use hubbys SA results. I got my amh done privately before his cycle but they told me they wouldn't be using it if I went to their clinic I would have to get it done with them- not a big deal. Also can I ask you- how many consultations did you have to have in gcrm before treatment and did they make you get an ultrasound or was that your decision?
Holly I agree with you- different docs drove me insane, I day they were putting my dose up the next day another doctor was decreasing it! Would it be the same
If you go private ? Have to say the continuity of having same doc is appealing to me.
The refund package is a lot of money upfront but it's reassuring that you have a baby in arms or money back!

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Tuesday, August 22nd 2017, 9:36am

I think they like to re test amh because it can change between cycles and they want a most up to date picture to decide your protocol. I had initial consultation and scan together (it's a package) I then had a delay as discovered large cysts for which I had to have surgery but once that was over I had consent and got started so one consultation/ scan then consent and cycle started - really quick and effecient. I think waiting around for rfc would drive me nuts - it's already stressed me out massively trying to just get a consultation after GP admin error meant I was supposed to have consult in April and it's only this Friday . Do any of you girls know what will happen on Friday at initial NHS consultation? It's in grove with dr Williamson dh has already had semen analysis via the NHS so hopefully that won't need repeated

Any other questions you's have about gcrm let me know . I always had dr traub he was lovely . All the consultants meet on the Thursday night and discuss individual cases and agree a protocol/ treatment so any time a decision was made about my treatment it was a joint decision between all the doctors . When they 1st discovered my endo and cysts dr traub said another consultant was more expert in this field and he got him in to re scan me - I don't think you would get that level of care in rfc. Yes gcrm are slightly more expensive but if we go again here at home I would definitely use them again - possibly try access fertility 2 cycle option this time though xx

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Tuesday, August 22nd 2017, 10:04am

Hi mrs. Thanks for all the info into GCRM. It's good to be able to talk to someone.
At the initial consultation I had an internal scan, bloods were taken and just a general discussion into my health and my partners health. From this hubby was referred for his SA and I was referred for the HSG test.

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Tuesday, August 22nd 2017, 11:13am

Yea thanks for Info!
After a lot of discussion we were finally leaning towards the access fertility last night and thought take the plunge with the refund package, but after speaking with both gcrm and access fertility this morning I'm again not sure. Access fertility said their prices are going up by 1K on 11th sept.
Gcrm told me (even with my notes) I would need another amh, and umtrasound, (as a new patient)these have to be 2 different appointments. So bloods appointment, consultation and ukstrasound appointmrnt, planning and consent appointment, so she said there would be no chance in completing a cycle before Christmas.
We had okanned to take few months off, take a holiday and maybe be ready to go again around Halloween.

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Tuesday, August 22nd 2017, 11:31am

God I didn't know they were putting their prices up - that's so much money and not including drugs or any extras

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Tuesday, August 22nd 2017, 11:35am

Half my message just disappeared how annoying lol! I am not sure what we will do - there is no way we could save that amount of money in a few months . I have started looking into ivf abroad they do seem to use more advanced techniques like picsi and micsi which aren't used here yet and it's seriously cheaper (2000 euros in Poland !) problem is the logistics and annual leave but iv made enquiries with a few clinics so will see what they say . Was considering access in gcrm but that's so much money I don't no . Thanks holly for the info I just want to get on to waiting list for NHS now so I can have that as back up next year tho hoping to have a private go somehow before that xx

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Tuesday, August 22nd 2017, 11:42am

Would you consider a private in rfc mrs? All in icsi is 5k or slightly less. Yea that's changed my opinion about the access, it's still more expensive than 2 rounds. I know I shouldn't base decisions on timings either but I really didn't want to wait to Dec to start.

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Tuesday, September 19th 2017, 8:48pm

Hi mrs and fingers crossed.

Just wondering if either of you decided on your next step? I'm still unsure! ?o(

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Wednesday, September 20th 2017, 12:27pm

Hi holly

I have consent appointment for gcrm at start of October . I'm still not 100 % on them but think they are our best option at the minute . We aren't doing access just going for one more round here and if it doesn't work then looking at going to a specialist clinic in Greece for last go (we have agreed 3 private rounds is our limit financially and emotionally ) i do wish there was more options here in NI. What are you leaning towards doing ?

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Monday, October 9th 2017, 1:45am

Hi holly, haven't been on this for ages! We took a holiday and got our heads cleared. We decided to go another round with rfc, thought may as well take advantage of having a previous treatment there Plus didn't have to do any more
Consent forms or tests so was very straightforward tho don't start to next month with the injections. Feels a bit different
Going into it second time round- it's hard to be hopeful after a failed go- are yous feeling the same?

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Monday, October 9th 2017, 8:40am

Hi fingers crossed - I feel the exact same ..I start injections 2nd November I feel different this time round -less hopeful but also less stressed about it which I suppose isn't a bad thing . I'm trying to not be too negative but it is hard when it didn't work 1st time thinking why would it work this time . It's just a lottery . Massive good luck with your cycle and we will probably be on a similar timeline so keep me updated i really hope we both have better luck this time round x

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Monday, October 9th 2017, 5:38pm

Hi fingers crossed. Did you have your review appointment with RFC before starting your second go?

I’m still undecided where to go. Going to see GCRM and then I’ll make a decision.

I don’t feel emotionally ready to start a second go just yet. Don’t think I’m completely over the failure.

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Monday, October 9th 2017, 6:22pm

I hope you don’t mind me asking but how expensive is RFC as you aren’t getting tests etc done again?

Libbymck

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Wednesday, October 25th 2017, 8:04pm

Hi hope you don't mind me jumping into the thread.. Iv had my NHS cycle of icsi at rfc in August resulting in a bfp my only embryo split into identical twins but we miscarried at 9 weeks

Libbymck

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Wednesday, October 25th 2017, 8:07pm

Half my msg was missing don't know why... So we are going back to rfc for cycle two.. Not having to repeat tests etc was a massive decider in this.. My miscarriage was only five weeks ago but I have booked my review privately In Order to get going again soon.. Our review is on Tuesday.. Fingerscrossed123 I was just wondering how long they wanted you to wait to go again

Holly555

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Wednesday, October 25th 2017, 9:00pm

Hi Libbymck. So sorry to hear that. It is such a difficult journey to be on. My review isn’t until Nov with RFC. It will be interesting to see if they do the same thing treatment wise or will they change it as I didn’t respond well to the drugs and resulted in only 2 eggs. Let me know how your review goes.

Libbymck

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Wednesday, October 25th 2017, 10:04pm

Thanks holly555 it was very tough.. I'm too impatient to wait for NHS review that's why iv booked it privately.. Il. Will let you know on Tuesday how it goes x

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Saturday, November 4th 2017, 9:11am

Hi Libbymck. How did your review go?

Libbymck

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Thursday, November 9th 2017, 2:00pm

Hi Holly555 it went great we signed our consent forms and we collect our meds on the 24th November dr mc manus is happy for us to start again with this period.. She said I wouldn't need any extra progesterone support as this was not the reason for our loss it was an extremely high risk pregnancy.. She is keeping all my meds the same..il probably be on spray longer due to the Christmas break

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Monday, November 20th 2017, 1:38pm

Hi Girls. I have my review appointment next week following first failed ICSI cycle. Hoping we are also allowed to start again on this cycle. Is this the norm I wonder? Holly hope your review appointment went well ?

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Wednesday, November 22nd 2017, 4:55pm

Hi poppy. I had my review this week. It was ok. I’m now deciding whether or not to go back to RFC or gcrm. I’m almost 100% sure I’m going to try gcrm this time.

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Wednesday, November 29th 2017, 8:29pm

Hi ladies, I haven’t been on this for ages- as I had mentioned before I am just dealing with this second time round differently, I agree with you Mrs, less hopeful but less stressed too and I tried
To keep my mind off it as much as possible during treatment- hence staying away from forums and I think it’s helped. So to update I had my second round with rfc, private obviously, and am currently on my 2 ww-
It’s sooooo difficult!! All went well (I hope!) in treatment and I am glad I stayed it rfc, I think it as helped with it all being less stressfull and more straightforward as knew exactly what to expect. Holly, is there anything holding you back from
Rfc or just want New clinic? Poppy I hope all goes well next week. And Libby this week!!

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Wednesday, November 29th 2017, 8:32pm

Good luck "fingerscrossed" really hope all works out for you, id day the 2ww is a killer! Every day prob feels like a month lol i hope u dont have to long to wait and ul see ur BFP xx

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Wednesday, November 29th 2017, 8:49pm

Fingerscrossed when is your otd ? I’ll keep everything crossed for you... I was told to cancel my 2nd cycle due to only having 2 follies but I went ahead and got 2 embies transferred on day 2 and have just got my BFP ... can’t believe it but I really do think that as I knew what to expect this time round I was far more relaxed and that definitely helped .. I went with gcrm in the end simply because they had my history etc but we were looking at options overseas if this cycle had have failed was even sitting on Sunday looking up flights lol I’m in shock ..I can’t wait to see all your bfps keep me updated I’ll keep everything crossed for you all xxx

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Wednesday, November 29th 2017, 9:17pm

OMG Mrs that is fantastic news!!! Such a blessing you didn’t cancel! And potential twins too!! Did you test early or wait to otd? Mine isn’t until 8th and seems a lifetime away!!

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Wednesday, November 29th 2017, 9:22pm

My otd is tomorrow ! I tested yesterday 11dp2dt - reason being I had a feeling as last time I had AF in full swing by now ..plus been feeling run down got a very sudden coldsore was starving all the time (lol) and so so tired so I wasn’t going to test early but just felt so different and with never being pregnant before I wasn’t sure if it could be that .. iv done 5 tests since then and another one tonight just to make sure lol..go for blood test tomorrow I just can’t believe it really am on cloud 9 feel so lucky just praying all goes well and we see a wee heartbeat (or 2!!) on 23rd at our 7 week scan ...did you end up having a 3 or 5 day transfer ? Do you think you’ll test early ? Xx

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Wednesday, November 29th 2017, 9:31pm

Aww big Congratulations Mrs2017. Wishing u the very best of luck ...just reading through your comments thank God you didn't cancel and went with your gut instinct xx

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Wednesday, November 29th 2017, 9:59pm

Thank you hopeful girl ... I just felt like we went through the 1st cycle for 6 mature eggs and only ended up with one embryo (and bfn) that even if we could get one embryo from the 2 follies then we would be in same position ..but ended up getting 2 and both put back. My hubby was leaving towards cancelling and getting a partial refund but he’s glad I insisted now lol..just couldn’t be annoyed starting all over again it’s such a rollercoaster . Are you doing a cycle yourself ? Xx

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Wednesday, November 29th 2017, 10:26pm

IM o delighted for you!! I hope that’s me next week! Can I ask when did you start to feel different? Your mind plays games with you but I’ve noting so far, mild cramping which is normal anyway! I’m now 3dp5dt and know it’s too early to “feel “ anything anyway. I vowed that I wouldn’t test early but I don’t know if I can wait another 9 days- especially when you know you can get result earlier but I’m aiming at least this day next week cos was that day last time my period arrived so see how get on. We transferred 2 blasts(same as last time) however I feel his time was different last time we were told were going to transfer 2 as both were bc and couldn’t be frozen anyway- this time they were Bb and had choice
2 or freeze 1, gut told me 2 and dr said careful what you wish for! I’m hoping as better quality that at least one will take!is blood test to confirm pregnancy? Dec don’t do a blood test after

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Wednesday, November 29th 2017, 10:50pm

Ah that all sounds very positive .. I’ll keep everything crossed for you. I just felt “off” for a few days over the weekend mostly ..would have been 6/7 dp2dt...Saturday night I was asleep by 7.30pm and that is just not me the tiredness was like I’d been run over .got a coldsore and felt achey over the weekend too like I was getting a flu (but didn’t )...had smallest amount of pink spotting on Sunday morning so comvinced myself it was all over had a good cry but by Tuesday when the tiredness was getting worse and I was literally starving all day and no period had arrived I tested and got BFP. I was terrified that it wasn’t going to be what I wanted but looking back I really did feel different for a few days before but just put it down to PMS as last time I got AF 3 days before OTD...oh and the cramping is really normal iv been having cramps since last week kept worrying that AF would show ..yea gcrm do a blood test as well just to check hcg levels etc ..I’m nervous even though iv done like 10 tests lol .. 2ww is a torture I really do hope rest of yours flies and you get a wee xmas miracle too xxx

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Wednesday, November 29th 2017, 11:08pm

well Your gut was right!! The blood test could give an indication of twins or not with the level!! I’m prayong that we get a Christmas miracle too, I keep thinking about when we got our last negative and it’s just the worst, I really don’t know how could go through it all again! ESP at Christmas!
My sister announced her pregnancy same day as egg collection which was hard to take, she’s got pregnant on first month trying , brings our tally up to 19 nieces and newphews and I just kee thinking will it ever be our time!!

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Wednesday, November 29th 2017, 11:20pm

Oh my god that’s tough on you. Did your sister know your going through this ? Life is just not fair sometimes . It’s hard when someone close to you gets pregnant so easily it’s like your so happy for them but sad for yourself lol.or when you see young girls and that getting pregnant by accident and there’s us spending our life savings getting into debt and it still not working some of the time . You just have to try and be positive I know easy to say now but i was like you every time I felt positive or hopeful I remembered August and the absolute devastation of a negitive test after all the hope but it will be worth it all when you get your bfp I really will be thinking of you .its great that you got to blast too and good quality blasts so there is every chance it will work this time for you ..I’m not sure if they would be able to tell from blood test but I’m going to ask tomorrow ..I will be happy so long as it’s all confirmed and we see at least one heartbeat in 3 weeks please god .. the worry never ends honestly lol xxx

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Wednesday, November 29th 2017, 11:32pm

No I didn’t tell her this time round I was going through it so she wasn’t being insensitive! I’m so pleased for her yea but as you said, sad for ourselves! I can imagine even with a positive you’d be so nervous to the first scan, then you will prob continue to worry until 12 weeks, and moreso I think than a natural pregnancy cos you’ve been through more than most people to get this far and no one except us in here know the emotional, phiysical and mental torture we go through. I am keeping positive tho!

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Tuesday, December 5th 2017, 8:18pm

Fingerscrossed I just came on to say I really hope you get your bfp this week - I have everything crossed for you.. my best friend just announced her pregnancy so all being well with my scan in 2 weeks we will be pregnant together which is lovely - will be the same for you and your sis ...I am thinking of you good luck good luck good luck xxx

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Wednesday, December 6th 2017, 12:08am

AH thanks so much Mrs!! I feel sick with worry remembering how I felt when last time didn’t work! I’m praying so hard I get good news on Friday, I don’t think could take another fail. That’s lovely news your best friend is also pregnant! Great that you’re getting your scan so quick too!! I don’t think rfc are as quick- they say 3 weeks after your positive. Relax and enjoy, you have absolutely no reason to think there will be something wrong, I can imigine tho I’d be the same, but just enjoy and take it all
In- you’re pregnant!!

Mrsr2017

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Wednesday, December 6th 2017, 10:25pm

My scan is 3 weeks after our positive too - I’ll be 7 weeks 1 day .. 2 weeks to go tomorrow it’s dragging in lol just want to see a wee heartbeat but so nervous... not long to go for you know how do you feel ? Do you get a blood test or just do a test yourself ? Are you waiting to Friday or will you test early ? Iv everything crossed for you that it will work this time ..I still can’t believe it did for us especially after such a disaster cycle so that should be hope for anyone lol iv everything crossed for you xx

  • "Fingerscrossed123" started this thread

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Friday, December 8th 2017, 6:21pm

Hi mrs2017, I waited to test today and I got a BFP!!!!!! I still think I’m in a dream, I can’t believe it!! It’s the best feeling ever isn’t it?! I’ve sent my letter of I’m not sure when they will let me know about my next appointment

Mrsr2017

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Friday, December 8th 2017, 7:04pm

Omg fingerscrossed I am DELIGHTED for you..it really is the best feeling in the world ..I had a good feeling that you would get a wee xmas miracle too that is fab news congratulations have you been feeling any symptoms ? Ahhhhhh great news :) xxx

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