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  • "angeldebs" started this thread

Posts: 77

Reg: Nov 11th 2007

Location: Northern Ireland

Children: DS1 - 7 ~ DS2 - 2

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1

Saturday, November 17th 2007, 10:53pm

Autism & ADHD

Hello all,

New to FZ but just want to pop over to this thread to see if any1 has older kids, my son is 7 1/2. My son was diagnosed with Autism last May and ADHD and I'm worried as he seems to be getting worse just wanted to see if anyone else is in the same situation? I under so much stree with him at the moment he has me on tender hooks, not good if I'm ttc.............

:bigcloud:



Rufus

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Reg: Oct 3rd 2005

Location: N Ireland

Children: One son, aged 8, daughter 1

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Sunday, November 18th 2007, 8:24pm

Hi debbie, sorry you are finding this hard. I am a Primary School teacher adn I know what these conditions all mean for you - not first hand myself though. I am sure sometimes you are so worn out. DO you have a local support group? Is your ds teacher supportive?

Is it ok to ask how is this amnanged, does he have any meds? (if you don't want to answer these publically. please pm me if that would help.

Thinking of you, love Lesa xxx
Keep smiling :happy:

  • "angeldebs" started this thread

Posts: 77

Reg: Nov 11th 2007

Location: Northern Ireland

Children: DS1 - 7 ~ DS2 - 2

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3

Sunday, November 18th 2007, 8:38pm

Hi Lesa,

What a lovely and caring reply, so thoughtful. I really don't mind posting a reply I'm very open anything that might benefit someone else is always good! Let me know if pm is ok but I don't mind talking about his meds it just happens he only recieved them on Thursday, but there is trouble with that too! I'm bit stress at the moment any advice would be welcome it's great your a teacher to get your perspective on it as I have been putting my self through hell over the weekend regarding the school.....

Thanks so much for the reply, hope to chat soon :rainbow:



Rufus

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Children: One son, aged 8, daughter 1

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Sunday, November 18th 2007, 8:55pm

I have just sent you a pm - hadn't seen this yet. If there is anything I can do!

Does he have a classroom assistant?

Does his teacher use a visual timetable? This would really help him cope with what is coming next. As changes in routine are so stressful. I also used social stories a lot with my pupil last year - these really helped with appropriate behaviour.

Please don't stress. Thinking of you.

Am going offline now - but will check up asap, love Lesa xx
Keep smiling :happy:

  • "angeldebs" started this thread

Posts: 77

Reg: Nov 11th 2007

Location: Northern Ireland

Children: DS1 - 7 ~ DS2 - 2

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5

Sunday, November 18th 2007, 9:34pm

Hi Lesa,

Thats very kind x, he has a 1 to 1 20 hours a week he is very lucky, the situation is very volatile at the minute in Nothern Ireland with the classroom assistant strike and it's upsetting him. He was prescribed a form of retlin (wrong spelling) on Thursday which I was supposed to start over the weekend, but due to a mix up at the doctors he didn't get his script! So he will have to wait until next week. He is getting worse but it hurts because I worry so much about the type of secondary schooling he will get and he has the intelligence just not the attention..... He is a great kid but very trying at the minute. The school has asked for another review by the board to see if they are meeting his needs and it is frighting me as I feel they are trying to push him out. They are talking about a special school but he isn't bad enough for that he should stay at main stream it is just his behaviour that is failing him.............I don't know what to do I cope on my own his dad has every trait he does and can't disapline him and my parents won't accept the reality of his condition they refuse to acknowledge how severe and trying he can be.....I am worried sick for him. I feel the system is failing him and I don't want a bleek future for him because he is autistic, I don't think it is neccessary in this day and age, anything is achievable. Sory just to add he has a visable time table but whats a social story as it is appropriate behaviour we struggle with xxxxxxxxxx


This post has been edited 1 times, last edit by "angeldebs" (Nov 18th 2007, 9:37pm)


Rufus

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Monday, November 19th 2007, 2:17pm

HI Debbie, will send you pm love x
Keep smiling :happy:

Posts: 2,625

Reg: Sep 26th 2005

Location: kent

Children: 6 yr old gorgeous girl, single mum now

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Monday, November 19th 2007, 2:50pm

social stories are brilliant (I'm a special needs teacher with expertise in autism!)

are there any ways you could investigate secondary schools (and primary) that have specialist autism units attached? the way the class is structured is very important. The most successful thing we do, along with visual timetables and social stories is using the TEACCH workstation approach, with pupils being as independent as possible in these and working for some soort of reward (might be a comic for two minutes or a favourite sensory item)

Behaviours are usually linked to issues with change and times of transfer from one activity to the next- it can be incredibly scary and the world can be very unpredictable (ever wondered why so many children with autism like trains? they are much more predictable than people- going along one track, and all they do is stop and go!). Social stories can help to prepare children for difficult times, as can having timed reminders, warning of when a favourite activity will be finishing and what will be happening next, I could go on and am happy to give you any info you want.

In terms of behaviour, can I ask if you have registered for disability living allowance? if you can get this (and you more than likely can) one thing you could do is apply for respite, or for direct payments so you can choose someone to come in and support you a few hours a week, or enable you to go shopping etc without the additional stress.

Sensory needs not being met can also cause behaviours- does he sleep well? if not he may need some sensory feedback he is not getting. pupils in the past have used weighted blankets (a company called southpaw in the usa make them, but if you search on ebay some people make them in kid freindly designs) also a lot of children have dome tent type things over their bed like you can get from ikea- helps them feel safe and calm. Swimming as an activity can be very calming too, and the school I last worked at was experimenting with using yoga techniques.

while you may want him in mainstream, maybe a better approach might be enabling him to have some access (two sessions a week) at a special school as one thing they do have is specialists, and specialist rooms like sensory rooms, hydro pools, loads of sensory equipment.

I hope this is of help to you, I'm waffling on a bit ow so I will leave it that if you have any more questions feel free to ask

cheers
veggie
adoption...after a typically long journey, approved November 05, linked with strawb December 05, Brought our princess home May 06, aged 21 months

single mum since dec 08, and very grateful for the FZ support through the whole lot xx



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Children: 6 yr old gorgeous girl, single mum now

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Monday, November 19th 2007, 2:56pm

can I just say I really do sympathise with you it must be really hard. Over the last for weeks, I have been punched in the face, pinched, kicked, had a chair thrown at me, been covered in bruises on my arms and legs, scratched, had my clothes ripped, had fingernails dug into me so hard it has drawn blood and been bitten. I have also been spat on. Its very very hard work but at 3pm I say goodbye to the children and they go home to their parents, who have them all afternoon, all night, all through the weekends, all throguh the holidays and without the backup of a classroom assistant to take over for a minute when you need a break. Thats why it is so important you get yourself a disability social worker (ask the health visitor or gp or school) and get some financial support so you can buy in support or get some respite!

xx
adoption...after a typically long journey, approved November 05, linked with strawb December 05, Brought our princess home May 06, aged 21 months

single mum since dec 08, and very grateful for the FZ support through the whole lot xx



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  • "angeldebs" started this thread

Posts: 77

Reg: Nov 11th 2007

Location: Northern Ireland

Children: DS1 - 7 ~ DS2 - 2

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9

Monday, November 19th 2007, 5:13pm

t-time @ our house is nuts!

Thanks Vegie and Lesa,
I just wanted to write bk straight away but you can guess what t-time is like here so I'll write asap I have so much to say and very interested in the suggestions, you are all very very kind.

Thank you chat asap after tea xxxxxx



  • "angeldebs" started this thread

Posts: 77

Reg: Nov 11th 2007

Location: Northern Ireland

Children: DS1 - 7 ~ DS2 - 2

  • Send private message

10

Monday, November 19th 2007, 7:01pm

Happy birthday

To Lesa just ralising ur fron NI, small world!

AND A VERY BIG HAPPY BIRTHDAY,

:party:

Hope you had a good day

:chocs:

And enjoy the rest of it

:flowers:

:cheers:



  • "angeldebs" started this thread

Posts: 77

Reg: Nov 11th 2007

Location: Northern Ireland

Children: DS1 - 7 ~ DS2 - 2

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11

Monday, November 19th 2007, 9:08pm

RE: t-time @ our house is nuts!

Hi Vegie and Lesa,

Sorry about the delay, God it all sounds great I know his school uses the visual time table and a structured day, but to be honest I don't at home it so hard to implement any disapline in ours we work so hard just to keep his energy under control that thing tend to slide I know it would be better in the long run but when you put Ryan to bed at 8 o' clock he is still singing down the stairs at 11. He must give his class support teacher a hard time, however thank god he isn't violent I just couldn't deal with it I feel for you veggie, thats why I support their strike in NI. Ryan doesn't need to do that he tries you enough mentally. I get DLA for Ryan and would love respite but the last I asked I was told you had to get a social worker and when I did approach SS, they caused me great humiliation as they rang bith Jude's creche and Ryan's school, although they said it was not a child protection issue the asked things like; where the children well dressed, did they look cared for and was Jude in on time or the last to be picked up???? I'm sorry but thats out of order I thought, I complained to the SSW and she apologised but said it was standard procedure what ever the circumstances! I was gobsmacked and very angery, so I wouln't di it again, they are a Joke considering the thing they don'y investigate........What is the blanket veggie I know where to get the tent's. I know the DISCO and others I heard of TEACH but thought it was a diagnostic tool? He is not sleeping very well Lesa at all, he takes around 3 hours to fall asleep! I really didn't want to give him meds and was always against them but, things have got so difficult and pressure from the school is so intense at times I felt I had no other choice....I understand what you are both saying about the special schools I always fear that spending all day with severely disabled children may make him regress, I don't know you always fear the worst. The yoga sounds good because Ryan is into meditating in a hilarious way! Just to update you on the meds, well he was quite crazy for a while afterwards 1-2 hrs but the last 1 or so I have not his aggressiveness tailing off? Duno but he is normal really grump and aggressive at this time, gona monitor him on them for a month as the consultant said the the stimulants leave the system as quickly as they take effect rather than the non-stimulants thats why I choose them as I had the choice.

Take care look forward to chating soon thank you again for all the advice you 're
stars

starsmile

Debbie xx



Posts: 2,625

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Tuesday, November 20th 2007, 10:56am

hiya debbie, the teacch approach uses simple steps to enable kids to become more independent in their work. they sit at a (preferrably partitioned) workstation, have a visual display of what they have to do (eg work symbol) and a visual display of what they will get for doing it (eg cars for two minutes) they have a tray of work on their left, and a finished box on the right. it is about doing work independently so the tasks can be fairly easy for them- it should be things they are familiar with. thats obviously a very very quick run down of how it works but it might be something the school should explore its very effective and kids with ASD like the structure and order of it when they get used to it.

as for using visual timetables at home, I can't encourage this enough as it should eliminate some of the behaviours as it will be very clear to your little boy what will happen and when. for example he might be wanting to play his favourite computer game and you want him to brush his teeth. he can't see past wanting the computer game so really acts up and won't brush his teeth. if he can see it, visually, that he will get the computer game after he brushes his teeth, it can aleviate the panic and behaviours. make a list of all the activities he needs to and wants to do at home, ask the school to do a symbol list and cut and laminate them for you. put sticky velcro on the back and set up a timetable board you can use at home, and a short sequence strip you can take when you are out (One lad I taught used to be desperate for KFC when he went to town with his mum, making shopping nearly impossible for his mum.- this child has quite extreme behaviours but is very bright. from his point of view, there was just no end to those boring shops (and how many kids do like that?) so he had a sequence strip, and his mum would put up the symbols say mummy's shop, followed by mummy's shop, followed by toy shop, followed by kfc, followed by car, followed by home. this meant he knew he would get the toy shop and kfc, and also helped him to transfer out of the toyshop which was another sticking point, as he knew he was going straight to kfc. these things can just make your life so much easier honestly!

as for the wieghted blanket, I'll post this then pop in a link. if it is taking that long for him to get some sleep it may be he needs some sensory input and this could be ideal. he may also need some sleeping medication- a lot of our kids did and you shouldn't feel bad asking for it.

thinking of you

veggie
x
adoption...after a typically long journey, approved November 05, linked with strawb December 05, Brought our princess home May 06, aged 21 months

single mum since dec 08, and very grateful for the FZ support through the whole lot xx



** CLICK TO SUPPORT FZ **


Posts: 2,625

Reg: Sep 26th 2005

Location: kent

Children: 6 yr old gorgeous girl, single mum now

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Tuesday, November 20th 2007, 11:03am

weighted blankets

here is the link to the southpaw site, which is what i used through work for calming in class.
http://www.southpawenterprises.com/store…ket,Product.asp

here is an ebay link, although i know nothing about the company- if you do a search for weighted blankets on ebay a few come up, just beware the cheap ones are normally lap blankets but even this might help in class

http://search.ebay.co.uk/search/search.d…eighted+blanket


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adoption...after a typically long journey, approved November 05, linked with strawb December 05, Brought our princess home May 06, aged 21 months

single mum since dec 08, and very grateful for the FZ support through the whole lot xx



** CLICK TO SUPPORT FZ **


Rufus

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Posts: 1,259

Reg: Oct 3rd 2005

Location: N Ireland

Children: One son, aged 8, daughter 1

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Tuesday, November 20th 2007, 2:05pm

Thanks! I also read your pms and will reply later on, just on for quick moment now while supposed to be doing school work!!!! Lol xxx
Keep smiling :happy:

Posts: 2,625

Reg: Sep 26th 2005

Location: kent

Children: 6 yr old gorgeous girl, single mum now

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Tuesday, November 27th 2007, 9:37pm

any luck looking into things debs?
adoption...after a typically long journey, approved November 05, linked with strawb December 05, Brought our princess home May 06, aged 21 months

single mum since dec 08, and very grateful for the FZ support through the whole lot xx



** CLICK TO SUPPORT FZ **


spysgirl

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Reg: Feb 3rd 2009

Location: wiltshire (devizes)

Children: i have five daughters ages 22 17 14 7 6

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16

Tuesday, February 3rd 2009, 12:50pm

ey

:smile:debmy name is sue im a 42 yr old mum of 5 girls i have 4 left at home .my youngest daughter kaitlin (6) has asd and adhd and after reading your thread (fz sorry thats were i found you )i just had to write to you as my life is appalling too ,i am in middle of fighting for statement ,and have no school backup ,, my house is constantly distroyed i used to be a real homemaker now iv given up and have just kept my house basic ,,i rarely go out with kaitlin on dayly shopping tho will go to places of interest ,my other children rarely get any of my attention as im always trying to control kaitlin ,,i have gone to social work department in desperation and asked for her to be placed in foster care with that they went to a panal and found me restbite for one weekend a month ,, it lasted 2 visits and resbite careres gave up ,, ther now currently looking for a new one,,i have been offered ritalin infact i have a perscription it is slightly similer it goes in system for 4 hours to help her cope with school WHAT ABOUT HOME LOL anyway if you would like to keep intouch then add me on my mn and hopefully we can support each other (suecooke01@msn.com) speak soon sue

Rufus

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Posts: 1,259

Reg: Oct 3rd 2005

Location: N Ireland

Children: One son, aged 8, daughter 1

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17

Tuesday, February 3rd 2009, 8:19pm

Hey Spysgirl, hope you are ok. It must be so hard for you. Is there any support in your area for parents of children with autism? Lesa x
Keep smiling :happy:




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